I am sorry all if you have been looking for an update. Since my uncle passed away, we have been dealing with so much in life. I had a month of fighting kidney stones (still haven't passed the last one from my bladder), a 4 day migraine that kept me in bed the last 2 days of it. Other family issues resulting from the funeral (you know how family can be at stressful times). Dealing with drs and trying to get a refill on pain meds (can't stop fentanyl cold turkey) and I have almost run out of patches because of the stones and migraines. So trying to drop quicker than intended and dealing with a few withdrawl symptoms today. I drop to 25mcg tonight and then Tuesday go down to 12. It was originally planned for mid-Jan to be off.
Just got back from Mayo Clinic Wed night. I had my 2nd Stelara shot Tuesday morning. I did get good news this time. The crohn's is under control and the pyroderma is in remission (haven't had a flare since Sept of that). I have been able to half my dose of cyclosporine from 300 to 150 mg and dropped prednisone from 25 to 20mg. I have a step down program for prednisone now that will have me off in mid-March.
As I get off prednisone, I will be able to lower the dose of insulins and probably come completely off in a few months, same with the blood pressure med.
It has been a long battle, but it looks like the end may be in sight. We have been trusting God for a long time to bring healing and restoration and slowly it is coming.
Thank you all for praying and your support.
Joy and Family