I had my second Stelara shot a few days before Christmas and so far, so good. Everything seems to be working wonderfully. I have been able to reduce the amount of prednisone from 30mg to 15mg since the first shot in Nov. I have a step down program for prednisone that has me off by the time I have the next shot in March. I have also dropped from 300mg cyclosporine to 150mg. When I go back to Mayo later this month there is a possibility that I will either dro to 100mg or even off completely. This med has a lot of side effects and it is not to be taken for more than 2 years straight. I have already been on the med since March 2011.
Last Tuesday (Jan 3) I came off both the fentanyl patch and dilaudid. I have been dealing with some withdralws, mainly leg cramps and general tiredness and weakness. The leg cramps also come from dropping the prednisone.
I am so glad that some of these meds are getting out of my system. I have been living on them for going on 3 years. I still have some 20+ meds that I take daily that add up to around 45 pills a day. I still have multiple shots of insulin daily, gel for arthritis, eye drops for glaucoma, etc.
Still have a long way to go, but there is finally an end in sight now.
~Joy and Family